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Post by Deleted on Jul 26, 2023 16:09:43 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not.
Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify.
Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing.
But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so.
There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees.
It is what it is. I am just having to come to terms with it.
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Post by besoeker3 on Jul 26, 2023 16:39:18 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. I'm sorry to hear that. I'm sure you have the best medical advice. Do the best you can and enjoy life the best you can.
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Post by Einhorn on Jul 26, 2023 16:41:57 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. I'm very sorry to hear your news, Srb7677. I know of someone who had the condition. I understand that his symptoms remained very mild for 25 years before it afflicted him seriously. I hope it's the same for you.
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Post by Deleted on Jul 26, 2023 16:47:19 GMT
You are only at the beginning and medical science progresses all the time. Let us hope that doctors will find an answer or at least better help in those 20 odd years. Good luck to you and remember that life is a great gift but Eternity is an even greater one.
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Post by wapentake on Jul 26, 2023 17:45:01 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. Oh blimey Steve known you a fair while,can only wish you the best and hope your life be longer than expected. Best wishes and look to the best of life and do all the things you can possible. Look after yourself
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Post by johnofgwent on Jul 26, 2023 18:28:10 GMT
Sixty something and counting. Just had a couple of ‘pre cancerous’ lumps dug out of my arse and in about a month i get to find how big a bullet i dodged. The reality is i’m here today but i could be run over by an arse on a deliveroo e-bike not stopping at the red light tomorrow.
Dad’s school pal the pathologist says almost everyone over about 55 who finds himself on his slab shows signs of a prostate cancer that would have got them in the next 10, 20 years had whatever else that put them on his slab not got them last week.
It is, regrettably, what it is. I wish you the best of good fortune in showing the providers of your diagnosis and timescale with evidence of severe underestimation of the time scale
And i suggest you do what i am doing not what dad did. Faced with his diagnosis he avoided doing much while he still could and regretted it some years later when he found it too late. If there are things you want to do, get off and DO them
A mate of mine has lived with this for so many years i have lost count. The post of drummer in the band he and his mates formed so many years ago escapes him but he still drinks like a rock and roller.
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Post by Montegriffo on Jul 26, 2023 18:42:00 GMT
I'm sorry to hear your news Steve. I don't know what to say other than my Irish grandmother had Parkinson's and she outlived all my other grandparents.
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Post by seniorcitizen007 on Jul 26, 2023 18:44:34 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. www.parkinsons.org.uk/news/study-shows-potential-benefit-caffeine-parkinsonswww.ncbi.nlm.nih.gov/pmc/articles/PMC3049348/#:~:text=Parkinson%27s%20Disease%20and%20Systemic%20Inflammation%201%20Neurodegenerative%20Diseases,4%20Parkinson%27s%20Disease%20and%20Systemic%20Inflammation%3A%20Experimental%20Evidences.
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Post by Deleted on Jul 26, 2023 18:46:56 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. www.parkinsons.org.uk/news/study-shows-potential-benefit-caffeine-parkinsonsThank you. That is the best news I have had all day, being the frequent tea and coffee drinking caffeine addict that I am.
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Post by seniorcitizen007 on Jul 26, 2023 19:29:50 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. Parkinson's Disease and Systemic Inflammation "Anti-inflammatory treatment in PD patients exerts a neuroprotective effect" www.ncbi.nlm.nih.gov/pmc/articles/PMC3049348/#:~:text=Parkinson%27s%20Disease%20and%20Systemic%20Inflammation%201%20Neurodegenerative%20Diseases,4%20Parkinson%27s%20Disease%20and%20Systemic%20Inflammation%3A%20Experimental%20Evidences. I have regular blood tests for CRP (C Reactive protein) that measure how much inflammation is present. This test can identify symptom-less low level infections, etc. My experience has been that I notice a "reduced health effect" when my CRP level goes above 1 mg/l. There are culinary herbs that are reputed to lower inflammation.
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Post by Deleted on Jul 26, 2023 20:15:28 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. Thanks for posting this Steve. We've been kicking around these forums a few years now and we get to know each other without ever meeting. I'm truly sorry to hear this news. Just keep on keeping on!
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Post by Fairsociety on Jul 26, 2023 20:33:24 GMT
We might not always see eye to eye on topics, but this one we are all agree on, they are coming up with new treatments all the time, and we will all be keeping our fingers crossed a cure is round the corner for you.
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Post by sheepy on Jul 26, 2023 20:38:00 GMT
Facing mortality, I faced it 25 years ago, cancer of the blood vessels, had it chopped out and survived another 25 years, I have more growing lumps now, I have done the things I have wanted to do for the last 25 years, helped create a politics which involve everyone against all the odds and enjoyed myself in my own way. In my opinion I have given more than I have taken, so when the time comes may the next parallel universe be as fulfilling as I have made this one for myself and others, so chin up Steve it comes to us all and you can do many self-satisfying things in 20 years.
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Post by Hutchyns on Jul 26, 2023 21:33:36 GMT
Sorry to hear that news Steve. Drinking the coffee and whatever else you might find out, may well minimise the symptoms for a good long time. Medical advances are progressing at a fair old pace, so some damn good treatments or even a cure may well emerge in the meantime.
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Post by The Squeezed Middle on Jul 27, 2023 13:44:24 GMT
I know that we don't agree on much, but I am genuinely sorry to hear that.
If it's any consolation to you, my friends mum was given 3 years to live 20 years ago and she's still with us. She's approaching 80 now and at this rate will have died of old age before her condition gets anywhere near her.
Hopefully you'll be spouting lefty bollocks for many more years to come.😉
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