|
|
Post by dappy on Jul 28, 2023 11:45:26 GMT
Mate that must be devastating news to hear and to try to process. Of course I like others wish you well as you cope with your illness.
Not for me to try to advise you what to do - you must find your own path. I suspect you may have some ups and downs emotionally while you come to terms with what is happening. If you have friends and family to support you when your mood is dark, that’s great but if at anytime 24/7 you need an empathetic stranger to download yours fears and anger too knowing you won’t have to face them the next morning for breakfast, give Samaritans a call on 116123. It’s what they are for.
|
|
|
|
Post by oracle75 on Jul 28, 2023 13:01:12 GMT
Of course i am sorry to hear of the results of your tests but at least you know and can plan, however flexibly.
Do sooner or later whatever you can share with your family, while you can. It is they who will remember sharing your life with them. Enjoy your sense of humour.
Laugh rather than be angry.
Settle disputes if at all possible and i am sure they would appreciate a journal into which you can write all your opinions, observations and experiences.
I lost my husband 4 months ago and he didnt do much of the above. As the surviving partner they are things i would cherish today and for always. Mere memories tend to become fuzzy with time.
Have the best life you can. You cant do any more.
|
|
|
|
Post by thomas on Jul 28, 2023 13:33:17 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. Steve , ive only just seen this. I am genuniely and truly sorry to hear this. You and i have known each other online on these political forums for a decades if not more , and ive always considered you part of the furniture in the old uk politics political room.
Personal tragedy , grief and health problems are things that hit us all from time to time ,and you will come to terms with things and make the best of them. My aunt was diagnosed with parkinsons a number of years back , so im aware of the disease on a personal family level.
Just wish you all the best mate. Im sure you are in all our thoughts and hopes.
|
|
|
|
Post by Pacifico on Jul 29, 2023 21:21:18 GMT
I'd like to add my thoughts of condolence - I can only second all the previous posts and I offer my support.
If you need anything PM me.
|
|
|
|
Post by johnofgwent on Aug 10, 2023 13:38:28 GMT
Something i saw this morning on the BBC news reminded me of this thread
Virgin’s commercial spaceship is about to / has just launched with it’s first commercial passenger.
Former Team GB canoeist Jon Goodwin, who bought his ticket for about £190k almost 20 years ago is going to be the first Olympian and the SECOND sufferer of this affliction to go into outer space.
If course the BBC publish this in a story rejoicing at the crew including a black mother and daughter who won a raffle rather than a white olympian but i guess his illness shamed tbe BBC into including him in their yarn.
So if you can fly into outer space while suffering this …..
|
|
|
|
Post by Ripley on Aug 10, 2023 15:25:21 GMT
Well after a brain scan last month the diagnosis has been confirmed. I officially have Parkinsons Disease. So it seems some of you are already older than I will ever be. Might have 20 years if I am lucky, less than 10 if not. Being 58 I had not quite reached the age when I was seriously contemplating my own mortality. Suddenly I have to, with the inevitability of much greater personal difficulties before that as the symptoms progress and intensify. Some of you here are already much older than I am and probably know what it feels like to contemplate your own inevitable demise, as I now find myself doing. But I guess all lives come to an end. We have known that from as far back as very early childhood. Something gets us all in the end, we never do know for certain what or when. I guess I at least know what is likely to finish me and how it is likely to go. The symptoms are likely to be very mild for a few more years yet but they will not remain so. There will come a time when punching a few keys on a keyboard might be beyond my capabilities. Retirement is 9 years away and am hoping to continue working until then but there are no guarantees. It is what it is. I am just having to come to terms with it. Steve: A degenerative disease is not on anyone's wish list, but you are in the company of Muhammad Ali, Neil Diamond, Jesse Jackson, Ozzy Osbourne, Linda Ronstadt, and Michael J. Fox, whose Foundation has raised more than $1 Billion to fund research for a cure for Parkinson's disease. Fox himself was diagnosed 32 years ago in 1991 and worked until two years ago. Take one day at a time. The speed of modern technology should give you reason for optimism. My mother lived 38 years beyond the 6 months her doctor gave her, and when she died, it wasn't from the original affliction. Good outcomes can happen unexpectedly, and a good outcome is my sincere wish for you. In the meantime, seize the day and live your life to the fullest while you're still able. |
|
|
|
Post by see2 on Aug 10, 2023 16:25:19 GMT
srb.
Really sad to hear that you have had a diagnoses and the possible threat it brings with it. I hope you take heart from the many good posts you have received, and that you still manage to live a good and active life for many many years to come.
In my teens I learnt that the doctor of one of my Grandfathers who died in his mid sixties, said he had a mind that was very bright and fully active. I have asked myself numerous times since then What state of mind I would prefer to have in my later days. I'm still not sure.
I think I am now in my later days, and one of my biggest joys is the realization that I can relax and stop trying to put the world to right.
My wife told me off earlier today when I was on about a big bill that was coming our way and I was showing some concern about the fact that neither of us were earning any income anymore. So I have been well told to relax, stop worrying and to enjoy ourselves for the time we have left.
I hope your future is far better than you might have initially thought.
|
|
